Blog

Retinoblastoma Awareness

Retinoblastoma Awareness

Meet Ryder! #littlestwarriorwednesday At 12 weeks pregnant we were told Ryder would have Down Syndrome. By 34 weeks my fluid was so high they we...

October 2018 Donations

October 2018 Donations

Happy October!This month I’m excited to announce that we are donating to a non profit that I have admired for a very long time! @magicwheelchair#li...

Advocate Like a Mother Podcast

Advocate Like a Mother Podcast

We are so excited to announce a new podcast coming soon!  A podcast where we share stories and resources to help parents find their voice and be th...

Stromme Syndrome Awareness

Stromme Syndrome Awareness

Meet Ruby! #littlestwarriorwednesday Ruby is a 13-year old with a rare genetic condition called Stromme Syndrome, which causes vision impairment...

What To Expect at a Sleep Study

What To Expect at a Sleep Study

At Eli's 2 year checkup I asked his pediatrician if she thought he needed a sleep study, she said no, he didn't need one. Then at his 3 year checku...

Goldenhar Syndrome Awareness

Goldenhar Syndrome Awareness

Meet Ozzie! #littlestwarriorwednesday Ozzie is our first child, but my fifth pregnancy. Thus, even though the pregnancy was clinically flawless,...

Hydrocephalus Awareness

Hydrocephalus Awareness

Meet Josiah! #littlestwarriorwednesday _Josiah was born at 26 weeks and 3 days. He developed hydrocephalus within a few weeks after his early birt...

Microcephaly Awareness

Microcephaly Awareness

Meet Claire and Lola! #littlestwarriorwednesday We had a normal sonogram with Claire when I was 19 weeks pregnant. Everything was right on track, ...

September 2018 Donations

September 2018 Donations

Happy September! This month we are donating to an organization that is near and dear to my heart. I traveled to India almost 2 years ago to visit ...

ASD Awareness

ASD Awareness

Meet Theo! #littlestwarriorwednesday Theo is almost 3 years old. Theo has autism, global developmental delays, and sensory processing disorder....

Wiedemann Steiner Syndrome Awareness

Wiedemann Steiner Syndrome Awareness

Meet Charlee!#littlestwarriorwednesday where we #spreadawareness Charlee was born full term with a full head of black hair. Everything was text b...

Lymphatic Malformation Awareness

Lymphatic Malformation Awareness

Meet Gavin!  #littlestwarriorwednesday where we #spreadawareness Gavin has Lymphatic Malformation of the face/neck area. It’s basically formati...