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December 2022 Fundraiser - Pontocerebellar Hypoplasia Awareness

Happy December!
This month we are donating 10% of all sales to @kinleyscourage who has a rare diagnosis called Pontocerebellar Hypoplasia. We are donating to help them with medical bills.

From Kinley’s mom:
Meet Kinley, a vibrant 4 year old toddler fighting against her odds 1 day at a time.

Kinley was born with a condition called Pontocerebellar Hypoplasia, an ultra rare condition that is universally fatal, and comes with many challenges. Because Kinley was born prematurely at 28 weeks, doctors didn’t suspect any of her delays being due to anything but her prematurity, until she was about to turn 3, and still couldn't crawl.

Just before her third birthday, Kinley underwent her first MRI and was finally diagnosed with PCH. It was a diagnosis that no one expected, and has changed her life drastically.
Kinley always received therapy each week since she was brought home from the hospital at 3 months old, but with this diagnosis came a drastic increase in appointments and regular therapies. This diagnosis also meant searching for specialists and finding the right doctors to manage her care.

Over the last year since her diagnosis, Kinley has shown her doctors that she won’t take “no” for an answer. She has exceeded expectations and pushed past what medicine deems possible for an individual with PCH by learning to crawl, sit, stand, climb, eat, and so much more. She is currently learning to walk, and impressing everyone who has been following her journey.

Kinley’s tenacious spirit and vibrant smile have been her biggest strengths, and she’s not slowing down! She is determined to succeed and keep up with her big brother in every way possible, and her parents are cheering for her with each success!

Follow along with her progress and join #kinleyscheerleaders over on her Instagram @kinleyscourage

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