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May 2023 Fundraiser - MPS1 Hurler Syndrome

Happy May!
This month we will be donating 10% of all sales to
MPS Society

Meet Jacob! In March of 2020 he was diagnosed with a Rare genetic disease called MPS1 Hurler Syndrome. He is lacking an enzyme that breaks down cellular waste and as a result it accumulates and builds up within his body. It affects every system in the body and is progressive and terminal.

At a time when the world was shutting down due to COVID and we received this earth shattering diagnosis we were connected with the National MPS Society. They are a 501 C 3 non profit organization who exists to cure support and advocate for MPS and ML. Their mission serves individuals, families and friends affected by MPS by supporting research, families and increasing public and professional awareness. They were our light in the darkness and the community surrounding them has brought so many resources and most importantly HOPE!

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