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Stromme Syndrome Awareness

Meet Ruby! #littlestwarriorwednesday

Ruby is a 13-year old with a rare genetic condition called Stromme Syndrome, which causes vision impairment, microcephaly, intestinal issues, slowed growth and developmental delays. As far as Ruby's mom, Angie, knows, there are fewer than 50 cases of Stromme Syndrome in the world! When Ruby was a baby, doctors told Angie that Ruby would not talk, walk or do much of anything at all.


Angie had faith that Ruby would do all of that and so much more. It took a little extra time, but Ruby went on to crawl, walk, talk and bless the world with her beautiful smile and radiant personality. Angie and Ruby share their story on Instagram, YouTube, and their blog to normalize differences and help break down barriers to inclusion and acceptance for all individuals with disabilities.

rare+awareness


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