The PMG Awareness Organization is a 501(c)3 nonprofit organization of families, caregivers and medical professionals who care about those with Polymicrogyria. We are committed to bringing awareness of Polymicrogyria (PMG) and to be a guiding light for those who have lost their way after being diagnosed.
Polymicrogyria (PMG), is a condition characterized by abnormal development of the brain before birth. The surface of the brain normally has many ridges or folds, called gyri. In children born with Polymicrogyria, the brain develops too many folds, and the folds are unusually small. The name of this condition literally means too many (poly-) small (micro-) folds (gyria) in the surface of the brain. These small folds do not process the information it receives like a normally formed brain. This causes problems with functioning in the body much like how the effects of a stroke can affect the brain. The impairments that are seen as a result of PMG depend on what part of the brain is involved and how severe the deformity is.
For some, PMG can also cause problems with vision, cognition, hearing, breathing and maintaining body temperature. Sometimes it comes with other diagnoses such as cerebral pasly, epilepsy, hydrocephalus, macrocephaly, microcephaly (certainly not an all-inclusive list). It is important to note that many cases are mild enough to go undiagnosed and the child is labeled as “developmentally delayed” or having a “seizure disorder” or “cerebral palsy.” It is imperative to take the extra step to find out why a child is being labeled with these disorders and have them undergo an MRI (magnetic resonance imaging exam) to look at the brain. PMG, at the present time, can only be diagnosed through MRI results. It is also important to note that a specialized radiologist who knows what they are looking for should read the results of the MRI.
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This is amazing to see such a rare disorder being represented like this! From a PMG mom, thank you for donating to this organization!